Happy freakin' New Year, y'all! I'm a couple of weeks late; sue me.
I saw bigotry in action in, of all places, church a couple of weeks ago. I won't go into details, but suffice it to say that it nauseated me.
I've had several people ask me what I do during the day. Let me give you a capsule synopsis of a usual day in my life. I'm usually up between 5 and 5:30 AM in the morning. I have a smoke (I know, I need to quit, don't bug me), maybe a cup of coffee, and I get JT out of bed since his bus arrives at 6:30 or so. I sign the nurse's papers for the night (Sarah gets a nurse at night and during the day as long as she has a trach), then I throw myself into the shower and prepare for my day. By 7:30 I'm heading out the door to take Pat and Mike to school (they go to a charter school, so no bus for them). I'm usually at work between 8:30 and 8:45, and there I stay until around 5:30 - 6 PM. Then I head home for the fun and games. Usually home between 6:30 - 7 PM, eat if it's ready, then watch Wheel of Fortune with Sarah. She can't see, but she loves the sounds of that show, so who am I to deny her a little happiness? After Wheel of Fortune, I start getting Sarah ready for bed, which includes burping her G-tube, giving her her medications through the G-tube, putting her pajamas on, suctioning her trach a few times while I'm doing all this, getting her positioned in bed, and turning on her nighttime music. Then I prepare her bedtime feeding, start and prime the feeding pump, and get her supper going into her. I then get about an hour to myself, unless The Better Half has other plans. I'm usually in bed by around 11 or 11:30 at night. So goes a typical day for me.
This is the seven day a week schedule, so needless to say there's not much time for a social life, going out to eat, etc. I'm not saying that so that everyone will say, "Oh, poor Steve, what a tough life!" Believe me, there are people out there who lead much rougher lives than I'll ever imagine living. I just wanted to put out there what a typical day for me is like, which might explain why I blog so infrequently. Just an FYI.