Still alive. At least I think I am. It's been very busy here the last little while. My little girl has had a couple of surgeries, again. She had both hips operated on right after Thanksgiving to try to get her leg bones to seat correctly in the sockets. So far everything seems to be positioned correctly. She looks so much longer now! If she could stand, she'd be more than three feet tall. My little girl is growing up. Now they're talking about either having to shorten her jaw to keep her tongue from falling back in her throat, or putting a trach in her throat. Her breathing is getting more and more labored, even after having her tonsils and adenoids removed early last year. I worry about her constantly. I don't want her to die, but she's going through so much, and you can't help but think that her quality of life can't be all that great. Then you think about how cheerful she is, what a happy little girl she is, and how she's so thrilled to hear my voice when I come home at night, and it hits you -- this kid is happy the way she is. If only the rest of us could accept ourselves the way we are and be happy with it. I just hope God continues to look after her and keeps her well. I don't want to lose another child.  ¶ 11:25 PM